• Erasing The Stigma Of Sickle Cell Disease Through Advocacy

    17 days ago - By Essence

    By Wunmi Bakare · Updated June 17, 2022 June 19 is World Sickle Cell Day. At 18 months, I was diagnosed with the most severe type of sickle cell anemia : HbSS. It's a mutation that occurs when a child inherits two genes of hemoglobin S from each parent. The rigid red blood cells clump together, causing blockages in blood flow that lead to chronic anemia, episodic pain crises, and widespread organ damage. With the disease progression, my symptoms became harder to manage as I aged. For years, I arduously searched for a cure and in 2019, I participated in a clinical research trial, receiving...
    Read more ...